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Important Documents

Meeting Materials

DateDescriptionRecordingSlidesReport Outs
12/14/15Project Kick-OffViewSlides 
1/08/16Use Case Working Group MeetingViewSlides 
1/22/16Use Case Working Group MeetingView Slides 
1/29/16Use Case Working Group MeetingViewSlides 
2/5/16Use Case Working Group MeetingViewSlides 
2/12/16Use Case Working Group MeetingViewSlides 
2/19/16Use Case Working Group MeetingViewSlides 
2/26/16Use Case Working Group MeetingViewSlides 
3/11/16Use Case Working Group MeetingViewSlides  
3/18/16

Concert Series Presentations

  • The Veterans Health Administration
  • The United States Social Security Administration
ViewSlides 
3/25/16Use Case Working Group MeetingViewSlides 
4/12/16Community Update CallViewSlides 
4/22/16Pilot Work Group Kick-OffViewSlides 
5/6/16Pilots Working Group MeetingViewSlides 
5/20/16Pilots Working Group MeetingView Slides 
6/3/16Pilots Working Group MeetingViewSlides 
6/17/16Pilots Working Group MeetingView Slides 
7/1/16Pilots Working Group MeetingViewSlidesView
7/15/16Pilots Working Group MeetingViewSlidesView
7/29/16Pilots Working Group MeetingViewSlidesView
8/12/16Pilots Working Group MeetingViewSlidesView
8/26/16Pilots Working Group MeetingViewSlidesView
9/9/16Pilots Working Group MeetingViewSlidesView
9/23/16Pilots Working Group MeetingViewSlidesView
10/7/16Pilots Working Group MeetingViewSlidesView
10/20/16Phase 2: Basic Choice for Research Consent LaunchViewSlides-
11/4/16Phase 2 Use Case Development Work GroupViewSlides-
11/18/16Phase 2 Use Case Development Work GroupViewSlides-
12/2/16Phase 2 Use Case Development Work GroupViewSlides-
12/9/16Phase 2 Use Case Development Work GroupViewSlides-
12/16/16Phase 2 Use Case Development Work GroupViewSlides-
1/6/17Phase 2 Use Case Development Work GroupViewSlides-
1/13/17Phase 2 Use Case Development Work GroupViewSlides-
1/27/17Phase 2 Use Case Development Work GroupViewSlides-
2/3/17Phase 2 Use Case Development Work GroupViewSlides-
2/10/17Phase 2 Use Case Development Work GroupViewSlides-
2/17/17Phase 2 Use Case Development Work GroupViewSlides-
3/3/17Phase 2 Use Case Development Work GroupViewSlides-
3/10/17Phase 2 Use Case Development Work GroupViewSlides-
3/17/17Phase 2 Use Case Development Work GroupViewSlides-
3/24/17Phase 2 Use Case Development Work GroupViewSlides-
4/7/17Phase 2 Use Case Development Work GroupViewSlides-
4/14/17Phase 2 Use Case Development Work GroupViewSlides-
5/5/17Phase 2: Basic Choice For Research Consent Community UpdateViewSlides-
5/12/17Phase 2: Basic Choice For Research Consent Pilot Work Group ViewSlides-
6/9/17Phase 2: Basic Choice For Research Consent Pilot Work GroupViewSlides-
6/23/17Phase 2: Basic Choice For Research Consent Pilot Work GroupViewSlides-
8/4/17Phase 2: Basic Choice For Research Consent Pilot Work GroupViewSlidesDownload
9/8/17Phase 2: Basic Choice For Research Consent Pilot Work GroupViewSlidesDownload
10/13/17Phase 2: Basic Choice For Research Consent Pilot Work Group
(Including presentations from Aaron, Bo, and Debi)
ViewSlidesDownload
12/8/2017Phase 2: Basic Choice For Research Consent Pilot Work Group ViewSlides-
01/12/18Phase 2: Basic Choice For Research Consent Pilot Work Group ViewSlides-
02/09/18Phase 2: Basic Choice For Research Consent Pilot Work Group ViewSlides-
03/09/18Phase 2: Basic Choice For Research Consent Pilot Work GroupView Slides-
04/13/18Patient Choice Pilot Work GroupView Slides-
06/15/2018Patient Choice Pilot Work GroupView Slides

Reference Material 

DateDescriptionDownload
9/14/17MiHIN FHIR Consent ExampleView/Download
9/12/17Health Data Exchange-What Should You Do?  Opt-in or Opt-Out?View/Download
12/27/16

Elaboration of Definitions of Responsible Party and Applicable Clinical Trial

Download
12/27/16Biobank Finances: A Socio-Economic Analysis and Review Download
12/27/16Informed Consent Template for Participating in Rare Disease Registries Download
12/27/16Informed Consent Form Template for Clinical Studies Download
12/27/16Informed Consent Information SheetDownload
12/27/16HIPAA Authorization for ResearchDownload
12/27/16Biobank Donor Information Sheet and Consent Form - STRATUM Template Download
12/27/16Benaroya Registry Repository Consent Form Template.Download
12/27/16AHRQ Informed ConsentDownload
12/27/16

The AHRQ Informed Consent and Authorization Toolkit for Minimal Risk Research 

Download
12/27/16

VA Portland Health Care System (VAPORHCS) Informed Consent Form

Download
12/27/16WHO Informed ConsentDownload
12/27/16FDA Use of Electronic Informed ConsentDownload
12/27/16

NIH Informed Consent Template

Download
12/27/16

NCI Informed Consent Form Template

Download
4/12/16Data Set Considerations Candidate Standards MappingDownload
4/12/16Data Set Considerations Candidate Standards Mapping Companion DocumentDownload
4/12/16The Patient Choice Technical Project Basic Choice Use CaseDownload
2/24/16Florida Consent Directive LimitedDownload
2/24/16Florida Consent DirectiveDownload
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