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Important Documents
| The Patient Choice Technical Project Basic Choice For Research Consent Use Case |
| Patient Choice Technical Project Pilot Application |
Meeting Materials
| Date | Description | Recording | Slides | Report Outs |
|---|---|---|---|---|
| 12/14/15 | Project Kick-Off | View | Slides | |
| 1/08/16 | Use Case Working Group Meeting | View | Slides | |
| 1/22/16 | Use Case Working Group Meeting | View | Slides | |
| 1/29/16 | Use Case Working Group Meeting | View | Slides | |
| 2/5/16 | Use Case Working Group Meeting | View | Slides | |
| 2/12/16 | Use Case Working Group Meeting | View | Slides | |
| 2/19/16 | Use Case Working Group Meeting | View | Slides | |
| 2/26/16 | Use Case Working Group Meeting | View | Slides | |
| 3/11/16 | Use Case Working Group Meeting | View | Slides | |
| 3/18/16 | Concert Series Presentations
| View | Slides | |
| 3/25/16 | Use Case Working Group Meeting | View | Slides | |
| 4/12/16 | Community Update Call | View | Slides | |
| 4/22/16 | Pilot Work Group Kick-Off | View | Slides | |
| 5/6/16 | Pilots Working Group Meeting | View | Slides | |
| 5/20/16 | Pilots Working Group Meeting | View | Slides | |
| 6/3/16 | Pilots Working Group Meeting | View | Slides | |
| 6/17/16 | Pilots Working Group Meeting | View | Slides | |
| 7/1/16 | Pilots Working Group Meeting | View | Slides | View |
| 7/15/16 | Pilots Working Group Meeting | View | Slides | View |
| 7/29/16 | Pilots Working Group Meeting | View | Slides | View |
| 8/12/16 | Pilots Working Group Meeting | View | Slides | View |
| 8/26/16 | Pilots Working Group Meeting | View | Slides | View |
| 9/9/16 | Pilots Working Group Meeting | View | Slides | View |
| 9/23/16 | Pilots Working Group Meeting | View | Slides | View |
| 10/7/16 | Pilots Working Group Meeting | View | Slides | View |
| 10/20/16 | Phase 2: Basic Choice for Research Consent Launch | View | Slides | - |
| 11/4/16 | Phase 2 Use Case Development Work Group | View | Slides | - |
| 11/18/16 | Phase 2 Use Case Development Work Group | View | Slides | - |
| 12/2/16 | Phase 2 Use Case Development Work Group | View | Slides | - |
| 12/9/16 | Phase 2 Use Case Development Work Group | View | Slides | - |
| 12/16/16 | Phase 2 Use Case Development Work Group | View | Slides | - |
| 1/6/17 | Phase 2 Use Case Development Work Group | View | Slides | - |
| 1/13/17 | Phase 2 Use Case Development Work Group | View | Slides | - |
| 1/27/17 | Phase 2 Use Case Development Work Group | View | Slides | - |
| 2/3/17 | Phase 2 Use Case Development Work Group | View | Slides | - |
| 2/10/17 | Phase 2 Use Case Development Work Group | View | Slides | - |
| 2/17/17 | Phase 2 Use Case Development Work Group | View | Slides | - |
| 3/3/17 | Phase 2 Use Case Development Work Group | View | Slides | - |
| 3/10/17 | Phase 2 Use Case Development Work Group | View | Slides | - |
| 3/17/17 | Phase 2 Use Case Development Work Group | View | Slides | - |
| 3/24/17 | Phase 2 Use Case Development Work Group | View | Slides | - |
| 4/7/17 | Phase 2 Use Case Development Work Group | View | Slides | - |
| 4/14/17 | Phase 2 Use Case Development Work Group | View | Slides | - |
| 5/5/17 | Phase 2: Basic Choice For Research Consent Community Update | View | Slides | - |
| 5/12/17 | Phase 2: Basic Choice For Research Consent Pilot Work Group | View | Slides | - |
| 6/9/17 | Phase 2: Basic Choice For Research Consent Pilot Work Group | View | Slides | - |
| 6/23/17 | Phase 2: Basic Choice For Research Consent Pilot Work Group | View | Slides | - |
| 8/4/17 | Phase 2: Basic Choice For Research Consent Pilot Work Group | View | Slides | Download |
| 9/8/17 | Phase 2: Basic Choice For Research Consent Pilot Work Group | View | Slides | Download |
| 10/13/17 | Phase 2: Basic Choice For Research Consent Pilot Work Group (Including presentations from Aaron, Bo, and Debi) | View | Slides | Download |
| 12/8/2017 | Phase 2: Basic Choice For Research Consent Pilot Work Group | View | Slides | - |
| 01/12/18 | Phase 2: Basic Choice For Research Consent Pilot Work Group | View | Slides | - |
| 02/09/18 | Phase 2: Basic Choice For Research Consent Pilot Work Group | View | Slides | - |
| 03/09/18 | Phase 2: Basic Choice For Research Consent Pilot Work Group | View | Slides | - |
| 04/13/18 | Patient Choice Pilot Work Group | View | Slides | - |
| 06/15/2018 | Patient Choice Pilot Work Group | View | Slides | |
09/28/2018 | Patient Choice Pilot Work Group | View |
Reference Material
| Date | Description | Download |
|---|---|---|
| 9/14/17 | MiHIN FHIR Consent Example | View/Download |
| 9/12/17 | Health Data Exchange-What Should You Do? Opt-in or Opt-Out? | View/Download |
| 12/27/16 | Elaboration of Definitions of Responsible Party and Applicable Clinical Trial | Download |
| 12/27/16 | Biobank Finances: A Socio-Economic Analysis and Review | Download |
| 12/27/16 | Informed Consent Template for Participating in Rare Disease Registries | Download |
| 12/27/16 | Informed Consent Form Template for Clinical Studies | Download |
| 12/27/16 | Informed Consent Information Sheet | Download |
| 12/27/16 | HIPAA Authorization for Research | Download |
| 12/27/16 | Biobank Donor Information Sheet and Consent Form - STRATUM Template | Download |
| 12/27/16 | Benaroya Registry Repository Consent Form Template. | Download |
| 12/27/16 | AHRQ Informed Consent | Download |
| 12/27/16 | The AHRQ Informed Consent and Authorization Toolkit for Minimal Risk Research | Download |
| 12/27/16 | VA Portland Health Care System (VAPORHCS) Informed Consent Form | Download |
| 12/27/16 | WHO Informed Consent | Download |
| 12/27/16 | FDA Use of Electronic Informed Consent | Download |
| 12/27/16 | NIH Informed Consent Template | Download |
| 12/27/16 | NCI Informed Consent Form Template | Download |
| 4/12/16 | Data Set Considerations Candidate Standards Mapping | Download |
| 4/12/16 | Data Set Considerations Candidate Standards Mapping Companion Document | Download |
| 4/12/16 | The Patient Choice Technical Project Basic Choice Use Case | Download |
| 2/24/16 | Florida Consent Directive Limited | Download |
| 2/24/16 | Florida Consent Directive | Download |