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Initiative Overview
The aim of this initiative is to determine how health information from a variety of data sources can be used for PCOR/CER, consistent with principles of bioethics and the legal requirements governing privacy of health information, including patient consent.
- Phase 1:
- Develop 15-20 research data use scenarios that pertain to PCOR and CER
- Phase 2:
- Assess the legal, regulatory, and policy environment governing the use of health information for PCOR/CER
- Develop a legal and ethics framework for protecting patient privacy during conduct of PCOR/CER
As a member of the stakeholder group, you will participate in the activities related to Phase 1, including:
- Identifying research data use scenarios that are patient-centric
- Identifying necessary policies and requirements to enable data use in research
- Defining the problems and needs
- Identifying instances where technical components intersect policy requirements; referencing relevant technical specifications, as needed
Meeting Schedule
*NOTE: All times below are in Eastern Standard Time.
| Meeting | Time |
|---|
| Meeting 1 (Kickoff) | Tuesday, December 1, 2015
3:00pm-4:00pm EST |
| Meeting 2 | Wednesday, December 16, 2015
1:00pm-2:00pm EST |
| Meeting 3 | Wednesday, January 6, 2016
1:00pm-2:00pm EST |
| Meeting 4 | Tuesday, January 19, 2016
1:00pm-2:00pm EST |
| Meeting 5 | Wednesday, February 3, 2016
1:00pm-2:00pm EST |
| Meeting 6 | Wednesday, February 17, 2016
1:00pm-2:00pm EST |
| Meeting 7 | Wednesday, March 2, 2016
1:00pm-2:00pm EST |
| Meeting 8 | Wednesday, March 16, 2016
1:00pm-2:00pm EST |
| Meeting 9 | Wednesday, March 30, 2016
1:00pm-2:00pm EST |
| Meeting 10 | Wednesday, April 13, 2016
1:00pm-2:00pm EST |
| Meeting 11 | Wednesday, April 27, 2016
1:00pm-2:00pm EST |
| Meeting 12 | Wednesday, May 11, 2016
1:00pm-2:00pm EST |
Space contributors
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