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Part 2 Questions and Answers

QuestionAnswered ByAnswer*
It would seem that patient mis-matching needs to be monitored to the "problem" as well.  Data integrity is key to prevent breaching of patient information in the patient portal -- has this been noted?Hannah GalvinAgreed.  This is a significant concern - one which most IT teams are already dealing with in current state.  This is out of scope for the PP2PI workgroup at this time, but really important to keep in mind.  Thanks for bringing this up.
Another factor to prevent the concern of 'data blocking' is that patient health literacy must be factored in.  Not all users are able to navigate the portal contents.Hannah GalvinAgreed.  This is one reason the PP2PI workgroup includes patient advocates.  Disparities in health and digital health literacy can significantly affect self-advocacy and quality of care.
Did Nadie consent to this DX being shared via the record?Hannah GalvinThis was a composite use case - not a specific example.  21st C. Cures does require sharing problem list data with patients via the Portal.  If patient partner has access to the portal, this can be a danger, which meets the patient harm exception. 
How can I become part of a workgroup? My startup has implemented data sharing via a mobile app which addresses lots of these concerns.Hannah Galvin, Greg White

Please feel free to e-mail me at hagalvin@challiance.org 

HL7 Security Work Group: Main call is on Tuesdays 3 – 4 PM https://us02web.zoom.us/j/82546740051?pwd=WlZwN3BzMWdOUitXS0tmTjVnOThhUT09  Meeting ID: 825 4674 0051  Passcode: 712852

HL7 Patient Care SDOH Clinical Care FHIR IG Work Group https://confluence.hl7.org/display/GRAV/FHIR+IG+Work+Group+Meetings#FHIRIGWorkGroupMeetings-FHIRIGMeetings  

HL7 Community Based Care and Privacy (CBCP) Workgroup Tuesdays 12:00 – 1:00 PM ET https://us02web.zoom.us/j/89234543086?pwd=anE3djgyQXFYbkFYTEZCNVBPYkVzZz09  Meeting ID: 892 3454 3086 Passcode: 873496

Kantara User Manager Access (UMA) Work Group https://kantarainitiative.org/groups/user-managed-access-work-group/

Join the Gravity Project https://confluence.hl7.org/display/GRAV/Join+the+Gravity+Project

Join the Protecting Privacy to Promote Interoperability Work Group Contact Serena Mack at serena.mack@drummondgroup.com 

Will the use cases that the Workgroup is focusing include considerations/guidance on how clinicians  can include Z codes on claims and how payers can use these codes?Hannah GalvinCoding guidance has not been part of the scope of the PP2PI workgroup thus far, but we'd be interested in hearing further your thoughts on how Z codes might be leveraged to meet some of the goals of the group.  Please feel free to reach out: hagalvin@challiance.org
Do you have a specific IPV screening tool that you recommend?Hannah Galvin

I have used the PRAPRE tool, as well as a modified version of this tool. In MA.  Here are some additional recommendations from the AAFP.

Great example of the potential impact of sharing sensitive information. I wondered why the certification for data segmentation was left as optional criteria in the 2020 ONC Cures rule as it seems some vendors are still 1-2yrs away from launching the functionality at the granular level.Hannah GalvinYes, this is a lot of work for vendors; probably more than even 1-2 years away.  Our first step is to revise the standards and implementation guidance. The major vendors (Epic, Cerner, Allscripts, athenahealth and others) sit on the PP2PI workgroup and are part of this discussion.  It will be important for the vendor community to develop some consensus on how best to implement standards around granular tagging if this is truly going to work in an interoperable manner.
Is United Us or NOW POW sharing information with actual government agencies and their systems of record? If so, who, and where?Leslie Paith NowPow works with public health departments, police departments, and child and family service agencies in various networks across several states. As customers, these organizations decide how NowPow will be integrated into their system of record and how the information on their referral activity in the NowPow application is shared with other organizations. 
Is blocking some info from longitudinal record a form of "info blocking"? Mike WolfI'm not 100% sure i know what you mean by "info bocking", but I can tell you what we do. We define standard policies for care providers for the type of referrals/info that can be shared, and we can say that resources for Substance Abuse are not shared outside of the provider creating the referral and the community partner fulfilling the resource request. Does that make sense?
Identity resolution? Is this a form of patient matching and if not, what is it?Mike WolfYes, identity resolution is patient matching
Does Unite Us have a Directory of providers by geographic area?Jake ThompsonYes we do as a feature of our platform. We classify providers as "in network" - providers that are users of our system and can participate in the care team workflow, able to send/receive referrals - and "Out of network" - a more expansive of directory of services that can be shared with the individual by traditional means. We are in 43+ states. The former is partnered with closely with community engagement and network teams. The latter is sourced through partnerships with 211s and other data sources.
Is United Us or NOW POW sharing information with actual government agencies and their systems of record? If so, who, and where?Jake ThompsonWe do have several government agencies that are our customers and we are sending data to their data architecture. We interoperate / exchange data with systems of record through one of the mechanisms overviewed in the webinar.

*The answers provided herein reflect only the opinion of the person by whom the question was answered and are not necessarily the opinion of ONC

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