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Announcements

  • Pilots
    • Updated SDC Phase II Schema files (Jan 26, 2016), have been uploaded to the Pilots shared drive here.
  • IHE Profile
    • The updated version of the IHE SDC Profile is now published. This version is available on the IHE website under QRPH listing here. The updated PDF version of the file is also available here.
  • FHIR Profile
    • Our Wednesday SDC FHIR Coordination Meetings have resumed. Meeting Information can be found in the Weekly Meetings Table below.
    • A list of FHIR SDC issues from the January 2016 FHIR Connectathon are available to view here . These issues have all been entered in the tracker.

Events

  • HealthCa.mp on FHIR Code-a-thon will be held on April 1-2, 2016 in Washington, DC. For more information click here.
    • This two-day code-a-thon is being held in conjunction with the HealthDataPalooza. This event is where developers from Federal and State-based organizations come together with Entrepreneurs, startups, and research organizations to build cool solutions that leverage the HL7 FHIR API.
    • Come on your own or come as a team. Spend two days developing an innovative solutions that uses FHIR and you could win a spot to present your work at the HealthDataPalooza in Washington, DC in May 2016.
    • Registration is $50 per person; federal employees and members of the 1776 DC Incubator may attend for free
  • HealthDataPalooza 2016 will be held May 8-11, 2016 in Washington, DC. Both in person and web-based attendance options are offered. To register click here.

Weekly Meetings

SDC FHIR Coordination

 SDC Pilots

 All-Hands Meeting

Meeting Name: SDC FHIR Coordination
Date: March 2, 2016
Time: 3:00 - 4:00 pm Eastern
URL: https://esacinc.webex.com/
Dial In: 1-415-655-0001
Access code: 731 602 925
Password: meeting		Meeting Name: SDC Pilots
Date: March 2, 2016
Time: 4:00 - 5:00 pm Eastern
URL: https://esacinc.webex.com/
Dial In: 1-415-655-0001
Access code: 731 602 925
Password: meeting		Meeting Name: SDC All Hands
Date: March 3, 2016
Time: 3:25 - 4:30 pm Eastern
URL: https://siframework1.webex.com/
Dial-In: 1-650-479-3208
Access Code: 663 397 496
Wednesdays @ 3:00 pm
Wednesdays @ 4:00 pm
Thursdays @ 3:25 pm

Initiative Overview and Scope

For detailed information on initiative goals, objectives and intended outcomes, please see the SDC Project Charter.

 

Summary: The Structured Data Capture (SDC) initiative will develop and validate a standards-based data architecture so that a structured set of data can be accessed from EHRs and be stored for merger with comparable data for other relevant purposes to include:

  • The electronic Case Report Form (eCRF) used for clinical research including Patient Centered Outcomes Research (PCOR)
  • The Incident Report used for patient safety reporting leveraging AHRQ ‘Common Formats’
  • The Surveillance Case Report Form used for public health reporting of infectious diseases
  • The collection of patient information used for determination of coverage, as resources permit.

 

Following is a visual conceptualization of the initiative workflow.

Use Case Diagram 

 

The proposed infrastructure will consist of four new standards that will enable EHRs to capture and store structured data. These will consist of: a standard for the CDEs that will be used to fill the specified forms or templates; a standard for the structure or design of the form or template (container); a standard for how EHRs interact with the form or template; and a standard to enable these forms or templates to auto-populate with data extracted from the existing EHR. The standards will facilitate the collection of data in such a way that any researcher, clinical trial sponsor and/or reporting entity can access and interpret the data in electronic format. For more information about this initiative, please see the Structured Data Capture Charter.

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