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Initiative Overview

The aim of this initiative is to determine how health information from a variety of data sources can be used for PCOR/CER, consistent with principles of bioethics and the legal requirements governing privacy of health information, including patient consent.

  • Phase 1:
    • Develop 15-20 research data use scenarios that pertain to PCOR and CER
  • Phase 2:
    • Assess the legal, regulatory, and policy environment governing the use of health information for PCOR/CER
    • Develop a legal and ethics framework for protecting patient privacy during conduct of PCOR/CER

As a member of the stakeholder group, you will participate in the activities related to Phase 1, including:

  1. Identifying research data use scenarios that are patient-centric
  2. Identifying necessary policies and requirements to enable data use in research
  3. Defining the problems and needs
  4. Identifying instances where technical components intersect policy requirements; referencing relevant technical specifications, as needed

Project Contacts

RoleNameEmail
Project DirectorPrashila Dullabhdullabh-prashila@norc.org
Project ManagerLauren Hoveyhovey-lauren@norc.org 
ONC LeadHelen Caton-Peters

Helen.Caton-Peters@hhs.gov

Stakeholder LiaisonKatherine Donaldson donaldson-katherine@norc.org
Collaboration Site ContactGagan Jindal jindal-gagan@norc.org

 

Meeting Schedule

*NOTE: All times below are in Eastern Standard Time.

MeetingTime
Meeting 1 (Kickoff)

Tuesday, December 1, 2015
3:00pm-4:00pm EST

Meeting 2

Wednesday, December 916, 2015
1:00pm-2:00pm EST

Meeting 3

Wednesday, December 23January 6, 20152016
1:00pm-2:00pm EST

Meeting 4Wednesday

Tuesday, January

6

19,

2015

2016
1:00pm-2:00pm EST

Meeting 5Wednesday, January 20February 3, 20152016
1:00pm-2:00pm EST
Meeting 6Wednesday, February 317, 20152016
1:00pm-2:00pm EST
Meeting 7Wednesday, February 10March 2, 20152016
1:00pm-2:00pm EST
Meeting 8Wednesday, February 24March 16, 20152016
1:00pm-2:00pm EST
Meeting 9Wednesday, March 230, 20152016
1:00pm-2:00pm EST
Meeting 10

Wednesday,

March 16

April 13,

2015

2016
1:00pm-2:00pm EST

Meeting  Meeting 11Wednesday, March 23April 27, 20152016
1:00pm-2:00pm EST
Meeting  Meeting 12Wednesday, March 30May 11, 20152016
1:00pm-2:00pm EST

 

 

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