TitleAuthorDateSource

Evaluating re-identification risks with respect to the HIPAA privacy rule

Kathleen Benitez and Bradley MalinDecember 14, 2009Journal of the American Medical Informatics Association
First, design for data sharingJohn Wilbanks and Stephen H FriendMarch 3, 2016Nature Biotechnology
New Tech Tonics Podcast: John Wilbanks, Standard-Bearer for Citizen ScienceLisa Suennen September 15, 2015Venture Valkyrie
Malin helps craft de-identification guidelinesPaul GovernDecember 6, 2012VUMC Reporter
Extending comparative effectiveness research and medical product safety surveillance capability through linkage of administrative claims data with electronic health records: A Sentinel-PCORnet collaborationHaynes et al.November 24, 2015

U.S. Food and Drug Administration (FDA) (Sentinel Initiative)

PCORI (PCORnet)

The Deidentification Dilemma: A Legislative and Contractual Proposal

Robert GellmanJanuary 4, 2011

Fordham Intellectual Property, Media
and Entertainment Law Journal

Registries for Evaluating Patient Outcomes: A User’s Guide

Outcome Sciences, Inc.April 2014The Effective Health Care Program (AHRQ)
An Ethics Framework for a Learning Health Care System: A Departure from Traditional Research Ethics and Clinical EthicsFaden et al.January-February 2013Hastings Center

Linking Users Across Domains with Location Data: Theory and Validation

Riederer et al. April 11–15, 2016WWW '16 Proceedings of the 25th International Conference on World Wide Web

Patient Identification and Matching Final Report

Audacious InquiryFebruary 7, 2014

ONC

Human Subjects Research Implications of “Big Data” Studies  SACHRP

Standards in the Use of Collaborative or Distributed Data Networks in Patient Centered Outcomes Research

 March 15, 2012  
Public policy for "Privacy, Anonymity and Big Data" requires combined technical and legal solutionsDaniel Barth-JonesSeptember 8, 2014FireceBigData

Big Data: A New Paradigm for Health Plan Oversight and Consumer Protection?

Sabrina Corlette, Sandy Ahn, and JoAnn VolkAugust 2015

Center on Health Insurance Reforms, Georgetown University McCourt School of Public Policy

Guidance Regarding Methods for De-identification of Protected Health Information in Accordance with the Health Insurance Portability and Accountability Act (HIPAA) Privacy RuleOffice for Civil Rights (OCR) November 26, 2012HHS
The Social, Cultural and Ethical Implications of Big Data Data & Society Research Institute and New York University’s Information Law InstituteMarch 17, 2014Data & Society
Big Data: Values and GovernanceWhite House Office of Science and Technology Policy, the UC Berkeley School of Information, and the Berkeley Center for Law and TechnologyApril 1, 2014Berkeley School of Information

 

 

 

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