Announcements

DAF Phase 3 pilots activities are taking place during weekly technical workgroups (TWG) meetings. Meeting details can be found on the homepage and all meeting artifacts can be accessed on the Past Meetings page.

Background

DAF Phase 3-data access for research aims to help providers and researchers query for patients’ data at both the individual and aggregate levels from multiple healthcare enterprises in the context of Learning Health System (LHS). The capabilities created as part of DAF Phase 3 are intended to be leveraged to build our nation's data infrastructure for a LHS and will also leverage work that has been completed in DAF Phase 1 and Phase 2 as appropriate. To learn more about the capabilities of DAF Phase 3 and the activities completed in Phase 1 and 2, please visit our Phase 3 charter.

DAF Phase 3 Pilot Sites

The DAF Phase 3 pilots sites are part of the PCORnet community, the National Patient-Centered Clinical Research Network, an innovative initiative of the Patient-Centered Outcomes Research Institute (PCORI). The goals of PCORnet are to "transform clinical research by engaging patients, care providers, and health systems in collaborative partnerships to improve healthcare and advance medical knowledge." 

Lincoln Peak Partners (LPP) developed the PopMedNet software for the PCORnet community and many others that include: FDA Sentinel post-market surveillance network, NIH Collaboratory basic research network, MDPHnet public health network for State of Massachusetts and many Clinical Data Research Networks (CDRNs).

pSCANNER and REACHnet are both part of the PCORnet Clinical Data Research Networks (CDRN). These CDRNs are "comprised of many different types of health systems who are partnering to conduct research as a network. Each individual CDRN will build capacity for conducting both randomized trials and observational comparative effectiveness studies using data from their practices and patient populations. These networks involve two or more healthcare systems, and include integrated delivery systems, academic medical centers, and safety net clinics."

 

ORGANIZATION(S)POINT OF CONTACT(S)CAPABILITIES TO BE PILOTED
Lincoln Peak Partners
(LPP)

Bruce Swan
swan@lincolnpeak.com

Bill Clarke
 bclarke@lincolnpeak.com

C2, C3, C4
patient-centered SCAlable National Network for Effectiveness Research 
(pSCANNER)

Daniella Meeker
dmeeker@usc.edu		C1, C2
Research Action for Health Network
(REACHnet)

Eliel Oliveira
eoliveira@lphi.org 		C1, C2, C3, C4

*C5 and C6 are deferred until C1-C4 pilot activities have been sufficiently completed

Pilot Deliverables

Pilot SiteDeliverable
LPP
pSCANNER

REACHnet
 

Phase 3 Reference Documents

DAF Phase 3 Technical OverviewAn overview of the PCORnet Abstract Model as well as the Proposed Technical abilities.
Phase 3 Pilot RequirementsInformation on the minimum technical requirements an organization must meet for Phase 3 piloting.
DAF/QH/SDC/CQF Comparison SlidesThis presentation provides a comparison and contrast of DAF to the previous and current ONC initiatives: Query Health (QH), Structured Data Capture (SDC), and the Clinical Quality Framework(CQF).
DAF Phase 3 FAQsThese draft slides address the frequently asked questions for data access for research.
DAF Phase 3 FAQs-REACHnetThese are the comment dispositions provide by the DAF support team based on feedback submitted by the REACHnet pilot. 
Functional Requirements (4/6/16)Functional Requirements identify the capabilities a system in a role must have in order to enable interoperable exchange of the healthcare data of interest. They provide a detailed breakdown of the requirements in terms of the intended functional behaviors of the application. 
Tabs (C1-C6) contain information about the Functional Requirements needed for each capability. 

PCORnet Common Data Model (CDM) Specification, Version 3.0

PCORnet Common Data Model v3.0 – parseable

The Common Data Model (CDM) is a way of organizing data into a standard structure. The approach PCORnet is using to do this mirrors the approaches used by other large national research consortia, including the HMO Research Network and the Mini-Sentinel Network. To learn more click here.
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