Page History

Use Case 1: Combine Data for PCOR

Combining Independently Managed Data for PCOR

Combining Clinical and Claims Data

Combining Birth Records and Claims Data

Secondary Analysis of Administrative Data on Substance Use Treatment CER

Combine Claims and Birth Records

Use Case 2: Consent Management

Research and Age-Related Consent

Considerations Related to Consent and Transitions from Minor to Adult

Research Data Use Scenarios on Special Populations and Protection Status

Research Involving Obtaining Consent from Incarcerated, HIV-Positive PrisonersResearch Involving Decisionally Impaired ParticipantsResearch Participants

Consenting Individuals with Impaired Decision-Making Capacity

Use Case 3: Use of Sensitive Data

Accessing Sensitive Use Behavioral Health Data for PCOR

Combining Mental Health Data with Physical Health Data

Precision Medicine

Consented Disclosures That Affect The Privacy of Consent to Disclose Genomic Data that Affects Family Members

Genomic Testing and Disclosure of Genomic Data to a MinorMinors

Use of genetic bio-markers data for researchGenetic Bio-Markers for PCOR

Individual and Population-Level Research Related to Sub-Populations

Privacy Concerns for American Indian/Alaska Native Individuals and/or Populations

Use Case 4:  Identification and Re-Identification of PCOR Data

Research Use Scenarios Related to Cumulative Re-identification Risks

Mosaic Effect: Precision Medicine Outside of Genomic Data

Identification Risk

Reidentification Risk from the Mosaic Effect 

Multi-Site Identity Linking

Creating a

Variations in Linkage Mechanisms/Availability of Unique Identifiers

Creating A Multi-Institutional Unique Identifier for Research

Use Case 5: Use Patient-Generated Health Data for PCOR

Patient-Generated Health Data

Use of Sensor Data

Creating A a Registry That that Includes Patient Reported Outcomes

Conducting Research on Use a Registry that Includes Patient Reported Outcomes within A RegistryUse of Sensor Datafor PCOR