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An Ethics Framework for a Learning Health Care System: A Departure from Traditional Research Ethics and Clinical Ethics
Title | Author | Date | Source | |||
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Evaluating re-identification risks with respect to the HIPAA privacy rule | Kathleen Benitez and Bradley Malin | December 14, 2009 | Journal of the American Medical Informatics Association | |||
First, design for data sharing | John Wilbanks and Stephen H Friend | March 3, 2016 | Nature Biotechnology | |||
New Tech Tonics Podcast: John Wilbanks, Standard-Bearer for Citizen Science | Lisa Suennen | September 15, 2015 | Venture Valkyrie | |||
Malin helps craft de-identification guidelines | Paul Govern | December 6, 2012 | VUMC Reporter | |||
Extending comparative effectiveness research and medical product safety surveillance capability through linkage of administrative claims data with electronic health records: A Sentinel-PCORnet collaboration | Haynes et al. | November 24, 2015 | U.S. Food and Drug Administration (FDA) (Sentinel Initiative) PCORI (PCORnet) | |||
The Deidentification Dilemma: A Legislative and Contractual Proposal | Robert Gellman | January 4, 2011 | Fordham Intellectual Property, Media | |||
Outcome Sciences, Inc. | April 2014 | The Effective Health Care Program (AHRQ) | ||||
An Ethics Framework for a Learning Health Care System: A Departure from Traditional Research Ethics and Clinical Ethics | Faden et al. | January-February 2013 | Hastings Center | |||
Linking Users Across Domains with Location Data: Theory and Validation | Riederer et al. | April 11–15, 2016 | WWW '16 Proceedings of the 25th International Conference on World Wide Web | |||
Audacious Inquiry | February 7, 2014 | ONC | ||||
Human Subjects Research Implications of “Big Data” Studies | SACHRPConsumer Consent Options for Electronic Health Information Exchange: Policy Considerations and Analysis | Melissa Goldstein and Alison Rein | March 23, 2010 | ONC | ||
March 15, 2012 | ||||||
Public policy for "Privacy, Anonymity and Big Data" requires combined technical and legal solutions | Daniel Barth-Jones | September 8, 2014 | FireceBigData | |||
Big Data: A New Paradigm for Health Plan Oversight and Consumer Protection? | Sabrina Corlette, Sandy Ahn, and JoAnn Volk | August 2015 | Center on Health Insurance Reforms, Georgetown University McCourt School of Public Policy | |||
Guidance Regarding Methods for De-identification of Protected Health Information in Accordance with the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule | Office for Civil Rights (OCR) | November 26, 2012 | HHS | |||
The Social, Cultural and Ethical Implications of Big Data | Data & Society Research Institute and New York University’s Information Law Institute | March 17, 2014 | Data & Society | |||
Big Data: Values and Governance | White House Office of Science and Technology Policy, the UC Berkeley School of Information, and the Berkeley Center for Law and Technology | April 1, 2014 | Berkeley School of Information |