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As part of an ongoing effort begun in 2008, an NIH-funded research team collects and manages data for Large National Survey wherein consented participants agree to allow a public use data set made available for researchers. Data elements in the survey include preferences for self-reported health status. Participants also authorize the release of their Medicare Claims data and linkage to public data sets for future research. The informed consent authorizes NIH to publicly post data sets deidentified in accordance with the HIPAA Safe Harbor Standard. 

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