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Use Case | Thematic Area | Scenario | ||
---|---|---|---|---|
Use Case 1: Combine Data for PCOR | Combining Independently Managed Data for PCOR | Combining Clinical and Claims Data | ||
Combining Birth Records and Claims Data | ||||
Secondary Analysis of Administrative Data on Substance Use Treatment CER | ||||
Combine Claims and Birth Records | ||||
Use Case 2: Consent Management | Research and Age-Related Consent | Considerations Related to Consent and Transitions from Minor to Adult | ||
Research Data Use Scenarios on Special Populations and Protection Status | Research Involving Obtaining Consent from Incarcerated, HIV-Positive PrisonersResearch Involving Decisionally Impaired ParticipantsResearch Participants | |||
Consenting Individuals with Impaired Decision-Making Capacity | ||||
Use Case 3: Use of Sensitive Data | Accessing Sensitive Use Behavioral Health Data for PCOR | Combining Mental Health Data with Physical Health Data | ||
Precision Medicine | Consented Disclosures That Affect The Privacy of Consent to Disclose Genomic Data that Affects Family Members | |||
Genomic Testing and Disclosure of Genomic Data to a MinorMinors | ||||
Use of genetic bio-markers data for researchGenetic Bio-Markers for PCOR | ||||
Individual and Population-Level Research Related to Sub-Populations | Privacy Concerns for American Indian/Alaska Native Individuals and/or Populations | |||
Use Case 4: Identification and Re-Identification of PCOR Data | Research Use Scenarios Related to Cumulative Re-identification Risks | Mosaic Effect: Precision Medicine Outside of Genomic Data | Identification Risk | Reidentification Risk from the Mosaic Effect |
Multi-Site Identity Linking | Creating a | Variations in Linkage Mechanisms/Availability of Unique Identifiers | Creating A Multi-Institutional Unique Identifier for Research | |
Use Case 5: Patient-Generated Health Data | Patient-Generated Health Data | Creating A Registry That Includes Patient Reported Outcomes | ||
Conducting Research on Patient Reported Outcomes within A Registry | ||||
Use of Sensor Data |