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Use Case | Thematic Area | Scenario |
---|---|---|
Use Case 1: Combine Data for PCOR | Combining Independently Managed Data for PCOR | Combining Clinical and Claims Data |
Secondary Analysis of Administrative Data on Substance Use Treatment CER | ||
Combine Claims and Birth Records | ||
Use Case 2: Consent Management | Research and Age-Related Consent | Considerations Related to Consent and Transitions from Minor to Adult |
Research Data Use Scenarios on Special Populations and Protection Status | Obtaining Consent from Incarcerated, HIV-Positive Research Participants | |
Consenting Individuals with Impaired Decision-Making Capacity | ||
Use Case 3: Use of Sensitive Data | Use Behavioral Health Data for PCOR | Combining Mental Health Data with Physical Health Data |
Precision Medicine | Consent to Disclose Genomic Data that Affects Family Members | |
Genomic Testing and Disclosure to Minors | ||
Use of Genetic Bio-Markers for PCOR | ||
Individual and Population-Level Research Related to Sub-Populations | Privacy Concerns for American Indian/Alaska Native Individuals and/or Populations | |
Use Case 4: Identification and Re-Identification of PCOR Data | Cumulative Re-Identification Risk | Reidentification Risk from the Mosaic Effect |
Multi-Site Identity Linking | Creating a Multi-Institutional Unique Identifier for Research | |
Use Case 5: Use Patient-Generated Health Data for PCOR | Patient-Generated Health Data | Use of Sensor Data |
Creating a Registry that Includes Patient Reported Outcomes | ||
Use a Registry that Includes Patient Reported Outcomes for PCOR | ||
Information Flow and Authentication in Linking Personal Devices to Clinical Data for Research |