Page History

Use Case 1: Combine Data for PCOR

Combining Independently Managed Data for PCOR

Combining Clinical and Claims Data

Combining BirthRecords Birth Records and Claims Data

Secondary Analysis of Administrative Data on Substance Use Treatment CER

Use Case 2: Consent Management

Research and Age-Related Consent

Considerations Related to Consent and Transitions from Minor to Adult

Research Data Use Scenarios on Special Populations and Protection Status

Research Involving HIV-Positive Prisoners

Research Involving Decisionally Impaired Participants

Use Case 3: Use of Sensitive Data

Accessing Sensitive Behavioral Health Data for PCOR

Combining Mental Health Data with Physical Health Data

Precision Medicine

Consented Disclosures That Affect The Privacy of Family Members

Testing and Disclosure of Genomic Data to a Minor

Use of genetic bio-markers data for research

Individual and Population-Level Research Related to Sub-Populations

Privacy Concerns for American Indian/Alaska Native Individuals and/or Populations

Use Case 4:  Identification and Re-Identification of PCOR Data

Research Use Scenarios Related to Cumulative Re-identification Risks

Mosaic Effect: Precision Medicine Outside of Genomic Data

Variations in Linkage Mechanisms/Availability of Unique Identifiers

Creating A Multi-Institutional Unique Identifier for Research

Use Case 5: Patient-Generated Health Data

Patient-Generated Health Data

Creating A Registry That Includes Patient Reported Outcomes

Conducting Research on Patient Reported Outcomes within A Registry

Use of Sensor Data