Reminder: Do not include any PHI or PII in Confluence. If you require 508 accessibility assistance or any other support for this system, then please send an email to onc-jira-questions@healthit.gov
...
Title | Response |
---|---|
Description | Under terms of funding from NIH, data sets collected with public funds must be made available while protecting privacy. Privacy researchers have shown that such data sets do not truly protect privacy, an issue that has received substantial public attention. This has resulted in more conservative approaches by data stewards, increasing barriers to data use by researchers. |
Primary actor/participant | Researcher, Data Stewards |
Support actor/participant | Funding agency |
Preconditions |
|
Post conditions |
|
Alternatives |
|
Considerations |
|
Data Elements Considered | Survey, Laboratory, Demographic, and Geocoded Data about Environmental Risks, consented data from administrative claims |
Purpose of the Data Collection | Research |
Purpose of Data Use | Research |
Terms of Transfer to the Data Holders | Consent |
Terms of Transfer to Researchers | IRB approval, agreements negotiated with data stewards |
Anchor | ||||
---|---|---|---|---|
|