The Patient Choice Technical Project Homepage

Meeting Schedule  

• This project seeks to address patient trust of health information exchange as the way health care providers and participants share and access health information.

• The aim is to assist the healthcare ecosystem by analyzing and developing technical standards to fulfill the technical capability for implementing and sharing individual consent (basic and granular choice) for the sharing of health information in healthcare settings and in a research environment. 

Project Goals

Phase 1: Basic Choice

• To develop Basic Consent Use Cases and Functional Requirements which can be used to guide a Piloting process
• Conduct pilots which test the functional requirements and scenarios described in the Use Case Development Phase
• Develop a best practices implementation guide based on lessons learned from piloting efforts.
• Align work efforts with Standards Developing Organizations (SDO) when possible
• Develop implementation guidance in form of a standard or artifact

Phase 2: Basic Choice for Research Consent and Phase 3: Granular Choice

Project Contacts